About: A concept analysis of children with complex health conditions: implications for research and practice

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An Entity of Type : schema:ScholarlyArticle, within Data Space : wasabi.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
has title	A concept analysis of children with complex health conditions: implications for research and practice
Creator	Azar, Rima Charlton, Patricia Doucet, Shelley Horsman, Amanda Hyndman, Nicky Luke, Alison Montelpare, William Nagel, Daniel
Source	PMC
abstract	BACKGROUND: This concept analysis aimed to clarify the meaning of “children with complex health conditions” and endorse a definition to inform future research, policy, and practice. METHODS: Using Walker and Avant’s (2011)‘s approach, we refined the search strategy with input from our team, including family representatives. We reviewed the published and grey literature. We also interviewed 84 health, social, and educational stakeholders involved in the care of children with complex health conditions about their use/understanding of the concept. RESULTS: We provided model, borderline, related, and contrary cases for clarification purposes. We identified defining attributes that nuance the concept: (1) conditions and needs’ breadth; (2) uniqueness of each child/condition; (3) varying extent of severity over time; 4) developmental age; and (5) uniqueness of each family/context. Antecedents were chronic physical, mental, developmental, and/or behavioural condition(s). There were individual, family, and system consequences, including fragmented services. CONCLUSIONS: Building on previous definitions, we proposed an iteration that acknowledges the conditions’ changing trajectories as involving one or more chronic condition(s), regardless of type(s), whose trajectories can change over time, requiring services across sectors/settings, oftentimes resulting in a lower quality of life. A strength of this paper is the integration of the stakeholders’/family’s voices into the development of the definition.
has issue date	2020-05-26(xsd:dateTime)
bibo:doi	10.1186/s12887-020-02161-2
has license	cc-by
sha1sum (hex)	6183169b3e9520d9a4a11779976f5c2db6fd130e
schema:url	https://doi.org/10.1186/s12887-020-02161-2
resource representing a document's title	A concept analysis of children with complex health conditions: implications for research and practice
has PubMed Central identifier	PMC7248453
schema:publication	BMC Pediatr
resource representing a document's body	covid:6183169b3e9520d9a4a11779976f5c2db6fd130e#body_text
is schema:about of	named entity 'CHRONIC CONDITION' named entity 'REGARDLESS' named entity 'SYSTEM' named entity 'SERVICES' named entity 'DEVELOPMENT' named entity 'VOICES' named entity 'CHILD' named entity 'BORDERLINE' named entity 'NUANCE' named entity 'FUTURE' named entity 'DEVELOPMENTAL' named entity 'BEHAVIOURAL' named entity 'palliative care' named entity 'subspecialists' named entity 'chronic health conditions' named entity 'speech language pathologists' named entity 'antibiotics' named entity 'social workers' named entity 'chronic health conditions' named entity 'North American' named entity 'quality of life' named entity 'chronic pain' named entity 'CINAHL' named entity 'clinical care' named entity 'pediatrician' named entity 'coordination of care' named entity 'interdisciplinary' named entity 'Ontario' named entity 'long-term' named entity 'chronic disease' named entity 'France' named entity 'Canada' named entity 'Children's Hospital Association' named entity 'van der Lee' named entity 'randomized control trials' named entity 'nurse practitioner' named entity 'remission' named entity 'congenital condition' named entity 'dehydration' named entity 'literature search' named entity 'decision makers' named entity 'literature search' named entity 'Canada' named entity 'family physicians' named entity 'diarrhea' named entity 'physiotherapist' named entity 'quality of life' named entity 'chronic illnesses' named entity 'incontinence' named entity 'born prematurely' named entity 'grey literature' named entity 'chronic conditions' named entity 'developmental age' named entity 'behavioural problems' named entity 'Health Resources and Services Administration' named entity 'health care' named entity 'pediatricians' named entity 'psychosocial' named entity 'Canadian' named entity 'gaining weight' named entity 'chronic conditions' named entity 'developmental age' named entity 'comorbid' named entity 'nongovernmental organizations' named entity 'comorbidity' named entity 'incontinence' named entity 'speech pathologist' named entity 'cystic fibrosis' named entity 'type I diabetes mellitus' named entity 'Maternal and Child Health Bureau' named entity 'Developmental age' named entity 'social workers' named entity 'Canadian' named entity 'comorbid' named entity 'chronic health conditions' named entity 'chronic conditions'

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