About: Key constituents for integration of care for children assisted with long-term home ventilation: a European study

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An Entity of Type : schema:ScholarlyArticle, within Data Space : wasabi.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
has title	Key constituents for integration of care for children assisted with long-term home ventilation: a European study
Creator	Berry, Jay Brenner, Maria Larkin, Philip O'shea, Miriam
Source	PMC
abstract	BACKGROUND: The number of children requiring long-term home ventilation has consistently increased over the last 25 years. Given the growing population of children with complex care needs (CCNs), this was an important area of focus within the Models of Child Health Appraised (MOCHA) project, funded by the European Union (EU) under the Horizon 2020 programme. We examined the structures and processes of care in place for children with CCNs and identified key constituents for effective integration of care for these children at the community and acute care interface across 30 EU/ European Economic Area (EEA) countries. METHODS: This was a non-experimental descriptive study with an embedded qualitative element. Data were collected by a Country Agent in each of the 30 countries, a local expert in child health services. Data were analysed using descriptive statistics and a thematic analysis was undertaken of the free text data provided. RESULTS: A total of 27 surveys were returned from a possible 30 countries (90.0%) countries. One respondent indicated that their country does not have children on long-term ventilation (LTV) in the home, therefore, responses of 26 countries (86.7%) were analysed. None of the responding countries reported that they had all of the core components in place in their country. Three themes emerged from the free text provided: ‘family preparedness for transitioning to home’, ‘coordinated pathway to specialist care’ and ‘legal and governance structures’. CONCLUSIONS: While the clinical care of children on LTV in the acute sector has received considerable attention, the results identify the need for an enhanced focus on the care required following discharge to the community setting. The results highlight the need for a commitment to supporting care delivery that acknowledges the complexity of contemporary child health issues and the context of the families that become their primary care givers.
has issue date	2020-02-15(xsd:dateTime)
bibo:doi	10.1186/s12887-020-1979-4
bibo:pmid	32061253
has license	cc-by
sha1sum (hex)	200f162ff6557492747f09438f8cfcaa4551942c
schema:url	https://doi.org/10.1186/s12887-020-1979-4
resource representing a document's title	Key constituents for integration of care for children assisted with long-term home ventilation: a European study
has PubMed Central identifier	PMC7023713
has PubMed identifier	32061253
schema:publication	BMC Pediatr
resource representing a document's body	covid:200f162ff6557492747f09438f8cfcaa4551942c#body_text
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