About: European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre

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An Entity of Type : schema:ScholarlyArticle, within Data Space : wasabi.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
has title	European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre
Creator	Conway, Steven De Rijcke, Karleen Drevinek, Pavel Foweraker, Juliet Havermans, Trudy Heijerman, Harry Lannefors, Louise Lindblad, Anders Macek, Milan Madge, Sue Moran, Maeve Morrison, Lisa Morton, Alison Noordhoek, Jacquelien Peckham, Daniel Sands, Dorota Vertommen, Anneke Balfour-Lynn, Ian
Source	PMC
abstract	A significant increase in life expectancy in successive birth cohorts of people with cystic fibrosis (CF) is a result of more effective treatment for the disease. It is also now widely recognized that outcomes for patients cared for in specialist CF Centres are better than for those who are not. Key to the effectiveness of the specialist CF Centre is the multidisciplinary team (MDT), which should include consultants, clinical nurse specialist, microbiologist, physiotherapist, dietitian, pharmacist, clinical psychologist, social worker, clinical geneticist and allied healthcare professionals, all of whom should be experienced in CF care. Members of the MDT are also expected to keep up to date with developments in CF through continued professional development, attendance at conferences, auditing and involvement in research. Specialists CF Centres should also network with other Centres both nationally and internationally, and feed Centre data to registries in order to further the understanding of the disease. This paper provides a framework for the specialist CF Centre, including the organisation of the Centre and the individual roles of MDT members, as well as highlighting the value of CF organisations and disease registries.
has issue date	2014-05-21(xsd:dateTime)
bibo:doi	10.1016/j.jcf.2014.03.009
bibo:pmid	24856776
has license	no-cc
sha1sum (hex)	71f1aeaebcdf9037c4541ad80f3a27623ae23d95
schema:url	https://doi.org/10.1016/j.jcf.2014.03.009
resource representing a document's title	European Cystic Fibrosis Society Standards of Care: Framework for the Cystic Fibrosis Centre
has PubMed Central identifier	PMC7105239
has PubMed identifier	24856776
schema:publication	J Cyst Fibros
resource representing a document's body	covid:71f1aeaebcdf9037c4541ad80f3a27623ae23d95#body_text
is schema:about of	named entity 'CENTRE' named entity 'nationally' named entity 'This' named entity 'MDT' named entity 'disease' named entity 'feed' named entity 'PATIENTS' named entity 'PEOPLE' named entity 'PAPER' named entity 'IS A' named entity 'KEEP' named entity 'EXPERIENCED' named entity 'EFFECTIVE' named entity 'PHYSIOTHERAPIST' named entity 'MEMBERS' named entity 'UNDERSTANDING' named entity 'NETWORK' named entity 'INDIVIDUAL' named entity 'BIRTH' named entity 'OUTCOMES' named entity 'CONTINUED' named entity 'STANDARDS OF CARE' named entity 'MICROBIOLOGIST' named entity 'SPECIALIST' named entity 'KEY' named entity 'DIETITIAN' named entity 'DEVELOPMENTS' named entity 'INVOLVEMENT' named entity 'CYSTIC FIBROSIS' named entity 'EUROPEAN' named entity 'SOCIETY' named entity 'DATA' named entity 'MDT' named entity 'EXPECTED' named entity 'CYSTIC FIBROSIS' named entity 'TREATMENT' named entity 'INCREASE' named entity 'CONSULTANTS' named entity 'EFFECTIVENESS' named entity 'ORGANISATION' named entity 'REGISTRIES' named entity 'LIFE EXPECTANCY' named entity 'SUCCESSIVE' named entity 'CENTRE' named entity 'MULTIDISCIPLINARY TEAM' named entity 'RESEARCH' named entity 'PROVIDES' named entity 'HEALTHCARE PROFESSIONALS' named entity 'COHORTS' named entity 'INCLUDE' named entity 'CLINICAL GENETICIST' named entity 'CLINICAL NURSE SPECIALIST' named entity 'DATE' named entity 'CENTRES' named entity 'SIGNIFICANT' named entity 'DISEASE REGISTRIES' named entity 'PHARMACIST' named entity 'ATTENDANCE' named entity 'RESULT' named entity 'FEED' named entity 'BETTER' named entity 'CLINICAL PSYCHOLOGIST' named entity 'HIGHLIGHTING' named entity 'CONFERENCES'

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