About: Epilepsy self-management during a pandemic: Experiences of people with epilepsy

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Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
title	Epilepsy self-management during a pandemic: Experiences of people with epilepsy
Creator	Buelow, Janice Miller, Wendy Tanner, Andrea Von Gaudecker, Jane
source	Elsevier; Medline; PMC
abstract	The purpose of this descriptive study was to, from the perspective of adult people with epilepsy (PWE) and caregivers of PWE, explore the effects of the current pandemic and resulting societal changes on epilepsy self-management. Ninety-four respondents completed a mixed-methods quantitative and qualitative survey focused on their epilepsy self-management experiences during the coronavirus disease-19 (COVID-19) pandemic. Respondents noted significant disruption in epilepsy self-management. Lack of ability to obtain medications or see epilepsy providers, as well as increased stress, social isolation, and changes in routine were all reported as troublesome, and more than one-third of the sample reported an increase in seizure frequency since the onset of the pandemic. Suggestions are given regarding how to support PWE during future COVID-19 outbreaks and to better prepare PWE and their caregivers for any life-altering events, such as a pandemic, with robust self-management skills that will allow them to maintain the highest level of function possible.
has issue date	2020-06-25(xsd:dateTime)
bibo:doi	10.1016/j.yebeh.2020.107238
bibo:pmid	32593874
has license	no-cc
sha1sum (hex)	80d5cbaba20857c15230efbd66742fbbedcd6cb9
schema:url	https://doi.org/10.1016/j.yebeh.2020.107238
resource representing a document's title	Epilepsy self-management during a pandemic: Experiences of people with epilepsy
has PubMed Central identifier	PMC7316066
has PubMed identifier	32593874
schema:publication	Epilepsy Behav
resource representing a document's body	covid:80d5cbaba20857c15230efbd66742fbbedcd6cb9#body_text
is schema:about of	named entity 'qualitative' named entity 'skills' named entity 'COVID-19' named entity 'level' named entity 'caregivers' named entity 'PWE' named entity 'stress' named entity 'TO SUPPORT' named entity 'PEOPLE' named entity 'OUTBREAKS' named entity 'EXPERIENCES' named entity 'PERSPECTIVE' named entity 'GIVEN' named entity 'COMPLETED' named entity 'PURPOSE' named entity 'QUALITATIVE' named entity 'QUANTITATIVE' named entity 'SOCIAL ISOLATION' named entity 'SURVEY' named entity 'respondents' named entity 'completed' named entity 'self-management' named entity 'coronavirus' named entity 'pandemic' named entity 'epilepsy' named entity 'coronavirus disease' named entity 'epilepsy' named entity 'COVID-19' named entity 'management skills' named entity 'people with epilepsy' named entity 'Epilepsy' named entity 'COVID-19' named entity 'shortness of breath' named entity 'highly contagious' named entity 'seizure' named entity 'Demographic information' named entity 'PWE' named entity 'working from home' named entity 'social distancing' named entity 'cognitive function' named entity 'Alaskan Native' named entity '1918 Spanish Flu pandemic' named entity 'Asian' named entity 'pharmacy' named entity 'seizure' named entity 'epilepsy' named entity 'epilepsy' named entity 'social isolation' named entity 'COVID' named entity 'Advanced Practice Nurses' named entity 'social distance' named entity 'social distancing' named entity 'coronavirus' named entity 'caregiver' named entity 'seizure' named entity 'higher risk' named entity 'social distancing' named entity 'epilepsy' named entity 'seizures' named entity 'work from home' named entity 'epilepsy' named entity 'PWE' named entity 'Pacific Islander' named entity 'spread of COVID-19' named entity 'COVID' named entity 'epilepsy' named entity 'lockdown' named entity 'epilepsy' named entity 'virus' named entity 'social distancing' named entity 'statistically significantly' named entity 'CDC' named entity 'COVID-19 pandemic' named entity 'anxiety' named entity 'tonic clonic' named entity 'epilepsy' named entity 'seizure' named entity 'African American'

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